Reporting by Abdulhafiz Holani
(Zaman Al Wasl)- Noor, 4, Nagham, 3, and Oday one year old, are three Syrian refugee children in Ersal suffer of Albinism, that characterises them with white skin, hair, eyebrows and lashes.
They left their hometown in al-Qusayr in Homs countryside and came to Lebanon to live in a camp, lack most of essential living needs.
Dr. Mohammed al-Zaghal explained that children with Albinism are called sometimes “children of the moon” due to their white faces which get pigmented with some brown dots and patches.
The doctor explained that the disease is associated with a number of vision defects, such as photophobia, nystagmus, and amblyopia. Lack of skin pigmentation increases skin sensitivity and susceptibility to sunburn and skin cancers.
Their father has visited most hospitals and clinics in Ersal to find some support to obtain glasses to his children, in order to be able to see him well, but he found nothing.
The children with Albinism cannot play in sun during the day, because they easily get son burn.
Beside the extreme poverty children suffer from, they are subject to discrimination among other children for their white colour, that pushed Om Oday to dye Nour’s hair in brown, but it lasted for short time only.
Albinism name came from the Latin word “albus” which means "white”, it is a congenital disorder characterized by complete or partial absence of pigment in the skin, hair and eyes due to absence or defect of enzyme responsible for making melanin in body.
Albinism results from inheritance of recessive gene, it is associated with a number of vision defects, such as photophobia, nystagmus, and amblyopia. Lack of skin pigmentation increases skin sensitivity and susceptibility to sunburn and skin cancers.
(Zaman Al Wasl)- Noor, 4, Nagham, 3, and Oday one year old, are three Syrian refugee children in Ersal suffer of Albinism, that characterises them with white skin, hair, eyebrows and lashes.
They left their hometown in al-Qusayr in Homs countryside and came to Lebanon to live in a camp, lack most of essential living needs.
Dr. Mohammed al-Zaghal explained that children with Albinism are called sometimes “children of the moon” due to their white faces which get pigmented with some brown dots and patches.
The doctor explained that the disease is associated with a number of vision defects, such as photophobia, nystagmus, and amblyopia. Lack of skin pigmentation increases skin sensitivity and susceptibility to sunburn and skin cancers.
Their father has visited most hospitals and clinics in Ersal to find some support to obtain glasses to his children, in order to be able to see him well, but he found nothing.
The children with Albinism cannot play in sun during the day, because they easily get son burn.
Beside the extreme poverty children suffer from, they are subject to discrimination among other children for their white colour, that pushed Om Oday to dye Nour’s hair in brown, but it lasted for short time only.
Albinism name came from the Latin word “albus” which means "white”, it is a congenital disorder characterized by complete or partial absence of pigment in the skin, hair and eyes due to absence or defect of enzyme responsible for making melanin in body.
Albinism results from inheritance of recessive gene, it is associated with a number of vision defects, such as photophobia, nystagmus, and amblyopia. Lack of skin pigmentation increases skin sensitivity and susceptibility to sunburn and skin cancers.
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